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Comments from the Seller: In 1995, when Rome Prize winning poet and fiction writer Manguso (Siste Viator) was a junior at Harvard, she suffered the first attack of a rare autoimmune disease called CIDP, which would turn her body against itself. CIDP attacks the myelin coating of the peripheral nerves. The result is increasing numbness, followed by paralysis spreading from the extremities inward, until the sufferer can no longer control his or her breathing, and dies. In short, lyrical chapters--the book free-associates between memories, while sticking to a rough chronological order--Manguso recounts the harrowing indignities of her treatments, frequent relapses, descents into steroid-induced clinical depression, crucial college sexual experiences had and missed, and trips back and forth between schools, hospitals and her parents' Massachusetts home. What makes this lightning-quick book extraordinary is not just Manguso's deadpan delivery of often unthinkable details, nor her poet's struggle with the damaging metaphors of disease, but the compassion she acquires as she comes to understand her pain in relation to the pain of others: suffering, however much and whatever type, shrinks or swells to fit the shape and size of a life.
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Ships From: Niagara Falls, NY
Acclaimed poet Sarah Manguso thought she was suffering from a weeks-long head cold during her junior year at Harvard in 1995, before tingling, numbness, and shortness of breath suggested something more mysterious -- and dire. She soon found herself in the intensive care unit of the local hospital, where they administered the first of 50 rounds of aphersis, an excruciating four-hour process of removing and replacing toxic components in the blood. Thus began Manguso’s nine-year battle with a disease so rare it has no name. Its closest approximation is "chronic idiophathic demyelinating polyradiculoneuropathy" -- in other words, her immune system was decimating her nervous system. With spare, precise prose, gallows humor, and piercing observation, Manguso seizes and artfully organizes shards of memories of paralysis, breathlessness, extreme pain, and terror. She "grew used to being sick and looking forward to recovering" only to become "used to having no prognosis at all, because with a mysterious disease, all things are possible." Manguso masterfully evokes her yearnings to indulge her 20-something appetites (e.g., sex and alcohol) while instead forced to confront mortality -- enduring misdiagnoses and interminable hospital stays, encounters with former classmates turned nurses, and the death of a former lover. The Two Kinds of Decay is an indelible meditation on remembering what one longs to forget, by a woman emerging from the exile of illness. --Kera Bolonik
More Reviews and RecommendationsThe events that began in 1995 might keep happening to me as long as things can happen to me. Think of deep space, through which heavenly bodies fly forever. They fly until they change into new forms, simpler forms, with ever fewer qualities and increasingly beautiful names.
There are names for things in spacetime that are nothing, for things that are less than nothing. White dwarfs, red giants, black holes, singularities.
But even then, in their less-than-nothing state, they keep happening.
At twenty-one, just starting to comprehend the puzzles of adulthood, Sarah Manguso was faced with another: a wildly unpredictable disease that appeared suddenly and tore through her twenties, vanishing and then returning, paralyzing her for weeks at a time, programming her first to expect nothing from life and then, furiously, to expecteverything. In this captivating story, Manguso recalls her nine-year struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, the deaths of friends and strangers, addiction, depression, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace and self-awareness, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.
Hers is not a day-by-day description of this grueling time, but an impressionistic text filled with bright, poetic flashes. The use of such terms as "spacetime" at the start of the book is a little off-putting, but before long Manguso has earned them: She is attempting, after all, to give form to a vast, formless and terrifying experience. Many sick people learn to live in the moment, but the power of Manguso's writing makes that truism revelatory.
More Reviews and RecommendationsSarah Manguso is the author of two books of poetry, Siste Viator and The Captain Lands in Paradise, and the short story collection Hard to Admit and Harder to Escape.