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The inspiring story of Rex, a boy who is not only blind and autistic, but who also happens to be a musical savant.
How can an 11-year old boy hear a Mozart fantasy for the first time and play it back note-for-note perfectly-but struggle to navigate the familiar surroundings of his own home? Cathleen Lewis says her son Rex's laugh of total abandon is the single most joyous sound anyone could hear, but his tortured aversion to touch and sound breaks her heart and makes her wonder what God could have had in mind. In this book she shares the mystery of Rex and the highs, lows, hopes, dreams, joy, sorrows, and faith she has journeyed through with him.
Endorsements
"This memoir documents a musical savant in a way we have not seen before, allowing us to reconsider the limits we place on people with disabilities. Highly recommended for all public libraries and academic libraries with autism and special needs collections." -- Library Journal, 11/25/2008
"Two of the most extraordinary and uplifting people I have ever known. Their story shows the amazingly moving struggle and success that proves love and faith can achieve miracles." -- Jane Seymour, actress, artist, author, and entrepreneur
"The remarkable story of a mother's love and a child's indomitable spirit, told in a writer's style that riveted me to the page, is singularly the most important work ever written on the relationship between a parent and a child with disability. For me, as a person who happens to be blind, the experience of reading Rex was an eye-opener I will never forget. Bravo, Cathleen! Bravo, Rex. Your work and your lives will forever change the future of disabilityin America. -- Tom Sullivan, author of Adventures in Darkness and Together
Reader Rating:
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April 04, 2009: What a wonderful book. I am studying to be a special education teacher and I found this book to be such an inspiration. This book reminds the reader that all children have the capability to be phenomenal, even if there is a disability or health problem evident in their life. Hope resonates throughout Lewis' book as she tells this story of her son and their family that will move you to tears through some parts of the book! She used the platform she provided for Rex to be an example for all parents who have sometimes lost sight of the wonderful abilities and talents of their children. This is one of the few books that I have read that acurately and inspiringly tell the story of a child with autism. I loved how Cathleen Lewis tied in her belief in God and how that played a part in the way she adjusted to the news of her son and the hope she had. She appropriately advocated for her son to teachers, peers, and those who held doubt. I would definetly recommend this book to any parent of a child who has special needs!
The only problem I had with this book is the cover. It states, "A mother, her autistic child, and the music that transformed their lives." I did not like this as it does not use people-first language. When you say "autistic child" you are putting the label in front of the child. I believe it would have been more appropriate to say, "her child with autism." This description would put the child first, which is a much more positive label.Reader Rating:
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March 17, 2009: Reading Rex introduced me to autism, a subject I had never contemplated before, and I embraced the experience. Told by a gifted storyteller and mother, this tale encompasses compassion, courage, valor, and sheer holding on for both mother and child. They share a mutual experience that grows richer for the telling, and their gift to all of us has the makings of a classic.
Some places I wept; at other times I celebrated, as these individuals melded together for Rex's good. Lewis' faith remained, her courage didn't flag, her encouragers supported their needs, and somehow the money flowed for the inevitable journey that thrust itself upon these two indomitable individuals.You may not enjoy this book in the usual sense, but your heart and mind will remain captivated long after you read the last word. As I said, a classic has been forged within the book's pages.Reviewed by Audrey Hebbert, M.A., author of Green Light Red Light