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$15.95

Textbook Details

  • ISBN:
    0312538804
  • ISBN-13:
    9780312538804
  • PUB. DATE:
    January 2009
  • PUBLISHER:
    St. Martin's Press

Schuyler's Monster: A Father's Journey with His Wordless Daughter by Robert Rummel-Hudson

$15.95 List Price
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Customer Reviews

A Father's Fight to Slay a Monsterby lit-in-the-last-frontier

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Schuyler's Monster is not some phantom conjured by a child and reported to live in her closet. Her Monster is real, a genetic abhoration, residing in the very structure of her brain tissue, invisible to all save the MRI machine. The monster is invisible; Schuyler is silent.

I was very excited to read this book, as I too have a wordless daughter. In the beginning I was disappointed because it...

Good insight, but...by Anonymous

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I picked up this book because my son has polymicrogyria (PMG)- the same brain malformation that the author's daughter has. The book gives good insight and encouragement to parents with children with disabilites. It stresses the importance of parents to stand-up for their child and get all possible available help for their child in the school system and beyond. Basically said, fight to the end for...

Sheeshby Anonymous

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I found this book at a Goodwill, not knowing anything about it ... As I began to read, I was amused by the author's sense of humor. But after a few dozen pages, it began to be apparent that there was nothing wrong with the little girl except she couldn't pronounce vowels. An ENTIRE BOOK dedicated to the "ups and downs" of living with a little girl who cannot pronounce vowels. At page 171,...


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Overview -

Schuyler's Monster

Product Details

  • Pub. Date: January 2009
  • Publisher: St. Martin's Press
  • Sales Rank: 210,911

Synopsis

When Schuyler Rummel-Hudson was eighteen months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Once they knew why Schuyler couldn’t speak, they needed to determine how to help her learn. They took on educators and society to give their beautiful daughter a voice, and in the process learned a thing or two about fearlessness, tenacity, and joy.

More than a memoir of a parent dealing with his child’s disability, Schuyler’s Monster is a tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs.

Publishers Weekly

The monster in this heartfelt memoir is polymicrogyria, an extremely rare brain malformation that, in the case of Rummel-Hudson's daughter Schuyler, has completely impaired her ability to speak. During her first three years, as her parents seek to find out what hidden "monster" is causing her wordlessness, they endure "two years of questions and tests and at least one unsatisfactory diagnosis." But while Rummel-Hudson initially rages at God for giving Schuyler "a life that would never ever be what we'd imagined it to be," his depiction of her next four years becomes a study not only in Schuyler's vivacious and resilient personality, but also in the redeeming power of understanding and a "stupid blind father's love." As he describes how Schuyler eagerly takes to various forms of communication, such as basic sign language and an alternative and augmentative communication device that provides whole words she can type to express her thoughts, Rummel-Hudson effectively and compassionately shows how the "gentle strangeness about her, like a visitor from some realm where no one spoke but everyone laughed," leads him to understand that "she was the one teaching me how to make my way in this new world." (Feb.)

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Biography

Robert Rummel-Hudson has been writing online since 1995. During that time, his work has been recognized by the Diarist Awards at diarist.net and has been featured in the Austin Chronicle, the Irish Times, the New Haven Register, the Dallas Morning News, Wondertime Magazine and Good Housekeeping, as well as on American Public Radio's “Weekend America.”

Robert and his family currently live in Plano, Texas, where Schuyler attends a special class for children who use Augmentative Alternative Communication devices. Much of her days are now spent in mainstream classes with neurotypical children her age.

More of Robert’s observations on life with Schuyler can be found on his blog at www.schuylersmonsterblog.com.